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Online Resources

The Internet can be a powerful tool while coping with head and neck cancer. It can seem as though there are endless online resources, ranging from websites providing detailed medical information and practical tips to those offering a sense of community and emotional support. Sometimes the breadth of available information can be overwhelming, so we have compiled an abbreviated list of resources separated by categories, including medical, cancer advocacy groups, care giving, insurance and legal advice, hospice care and forums. Note that there are many other credible, high-quality sites that might help you during your cancer journey. The sites listed here are simply good starting points, and they may serve your needs without you having to look further. The categories listed below will help you find information needed to empower you at this time.

Every case is different. When you’re reading on the Internet, I think it’s really important to know that every situation is different, every cancer is different.Tony L. (oral cancer survivor)

Medical

Governmental departments and notable cancer organizations can be first-rate sources of information about the medical details of cancer. These respected groups have years of experience translating complicated scientific research and medical facts for patients and family members. The following websites from trusted organizations may be used to supplement information shared in the Head & Neck Cancer Guide:

National Cancer Institute
American Cancer Society
American Institute for Cancer Research
American Society of Clinical Oncology
CancerCare
Dysphagia Research Society
International Association of Laryngectomees
LiveStrong
MDAnderson Cancer Center
National Cancer Institute – Find treatment facility
Chemocare.com

Cancer advocacy groups

Cancer advocacy groups promote research and awareness while providing advice on how to navigate the complexities of cancer. These organizations can also be a good start if you are interested in becoming involved in advocating for cancer awareness and research:

•    SPOHNC (Support for People with Oral and Head and Neck Cancer)
•    American Cancer Society Action Network
•    Head and Neck Cancer Alliance
•    National Coalition for Cancer Survivorship
•    Oral Cancer Foundation
•    Skin Cancer Foundation

Caregiving

Caregiving for head and neck cancer patients is an important part of cancer treatment and can be very challenging.The following websites provide detailed caregiving advice and can empower caregivers with tools to provide the best level of support:

•    CancerCare
•    Caregiver Resources from the American Cancer Society
•    Caregiver Resources from the National Cancer Institute
•    Family Caregiver Alliance
•    National Family Caregivers Association

Hospice care

Hospice care is provided for patients in the last stages of an incurable disease. While medical care aims to cure or treat a disease, hospice care aims to reduce pain, manage symptoms and provide emotional comfort. The following websites provide detailed information on hospice care:

•    Hospice Information from the American Cancer Society
•    Hospice Information from The National Cancer Institute
•    Hospice Association of America
•    Hospice Net
•    National Association for Home Care and Hospice
•    National Hospice Locator
•    National Hospice and Palliative Care Organization

Helping children understand cancer

Head or neck cancer in the family can have a profound impact on children. Explaining these matters to children and supporting them emotionally as the family takes this journey can be difficult. These websites provide detailed information about helping children understand and cope with the changes that come along with diagnosis, treatment and recovery:

•    Helping Children When a Family Member Has Cancer from the American Cancer Society
•    Helping Children Understand Cancer from CancerCare
•    Kids Konnected
•    Telling Kids About Cancer
•    When Your Parent Has Cancer: A Guide for Teens from the National Cancer Institute

Forums

Cancer patients and caregivers can find it valuable to interact with other people having similar experiences. One simple way to do this is online, through a forum. Forums can be helpful because you can learn from others who have been in your shoes, but they can also be scary and perhaps misinformed. If you decide to check out these forums, it’s important to remember that cancer treatments are sometimes handled differently depending on the individual needs of the patient. While these forums may be a good place to start, there may be in-person resources such as support groups in your community.

•    American Cancer Society – Head and Neck Cancer
•    CancerCompass- Head and Neck Cancer Forum
•    CancerForums.net
•    Oral Cancer Support
•    Web Whispers
•    4th Angel

Other

Here are some additional online resources to further your education of head and neck cancer:

•    My Voice - Itzhak Brook, MD